UPCOMING Events

August 15 2019

Neighborhood Night at Wildflower Bread

5pm - 8pm

Wildflower Bread Goodyear, AZ and Gilbert, AZ

+ Event Details

August 15 2019

Neighborhood Night at Wildflower Bread

On the night before what would have been Travis' 5th birthday, Wildflower Bread is hosting T.E.A.M. 4 Travis for their Neighborhood Nights program. Please join us for great food and fellowship. 


Participation is as easy as 1-2-3!!

1. Get a hard copy or soft copy of the special flyer (available soon on our website, our social media pages and from any of our Board Members).

2. Show the flyer when you order your food. 

3. Enjoy your food! 


T.E.A.M. 4 Travis receives a portion of the proceeds from each order placed with a hard or soft copy of the flyer. Here's the ONLY catch: WE WANT AT LEAST 100 FRIENDS to participate - the more people who come out, the higher the percentage of proceeds T4T receives! 


Visit either location below:


Palm Valley Pavilions West 1380 N Litchfield Road, Goodyear, AZ 85338

(I-10 and Litchfield Road)


Rivulon 75 E Rivulon Blvd, Suite 101, Gilbert, AZ 85297

(Gilbert Road and the Loop 202 SanTan Freeway)

5pm - 8pm

Wildflower Bread Goodyear, AZ and Gilbert, AZ

September 18-20 2019

Global Genes RARE Patient Advocacy Summit

All day

San Diego, CA

+ Event Details

September 18-20 2019

Global Genes RARE Patient Advocacy Summit

Join us at this exciting RARE event!

  • A jam-packed program filled with TED-style keynotes and five tracks of compelling educational content ranging from the latest in care to cutting-edge research and therapies.
  • 100 exhibits featuring programs and services for the rare disease community.
  • Workshops, dinners and networking activities to inspire conversations and spark collaborations.

All day

San Diego, CA

Summer Break 2019

RARE ACROSS AMERICA

All day

Arizona Congress Member's Office

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Summer Break 2019

RARE ACROSS AMERICA

Thanks to Rare Disease Legislative Advocates, T.E.A.M. 4 Travis will participate in RARE ACROSS AMERICA during Congress' Summer Recess July 29-September 8. During our appointment, we'll speak to an Arizona Member of Congress, sharing with them about Isolated Congenital Asplenia and Travis' story. Stay tuned for updates once we receive our date.


All day

Arizona Congress Member's Office

Downloads

Click on one of the files below to get your flier for Wildflower Bread Neighborhood Night on August 15! 

The first file is for the Goodyear location, the second file is for the Gilbert location!

TEAM 4 Travis NN (pdf)

Download

TEAM 4 Travis NN Rivulon (pdf)

Download

Event Partners

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PAST EVENTS

May 18 2019

RARE on the ROAD

All day

History Colorado Center Denver, CO

+ Event Details

May 18 2019

RARE on the ROAD

It was great to be part of this Rare Disease Leadership Tour hosted by The Everylife Foundation and Global Genes. We made some new friends and learned so much about patient advocacy. We were inspired as Mark Dant of The Everylife Foundation shared his son Ryan's rare disease battle. We were honored to have T.E.A.M. 4 Travis' logo featured on the Welcome Poster. We learned effective ways to tell your Rare story from Ashley Yee of Global Genes and build a powerful social media presence from Lee Aase of Mayo Clinic Social Media Network.

All day

History Colorado Center Denver, CO

February 28 2019

Rare Disease Day

All day

National Institutes of Health Washington, DC

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February 28 2019

Rare Disease Day

In early February, great friends invited me to visit and attend Rare Disease Day at the National Institutes of Health. It was an amazing day listening to speakers like NIH Director Dr. Francis Collins, patients, physicians and advocates and learning more about the rare disease community. Dr. Casanova graciously arranged a meeting with his friend Dr. Dan Kastner, of the National Human Genome Research Institute.

All day

National Institutes of Health Washington, DC

January 23 2019

Selleri Lab UCSF Visit

University of California, San Francisco Medical School

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January 23 2019

Selleri Lab UCSF Visit

Dr. Licia Selleri invited T.E.A.M. 4 Travis  to present to her lab team and department chair Dr. Ophir Klein at UCSF. In the Selleri Lab, they study the genetic and regulatory basis of how elaborately patterned tissues form during embryonic development and evolution. Essentially, they use the mouse model to get a better understanding of genetics in embryonic development, including what causes the spleen to not develop properly.


Despite the tragic reason behind the visit, it was so rewarding to interact with these wonderful geneticists and researchers, bridge the gap between science and humanity and learn so much more about their work on genetic birth defects like Isolated Congenital Asplenia.

University of California, San Francisco Medical School

November 5 2018

Casanova Lab Visit

The Rockefeller University - New York, NY

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November 5 2018

Casanova Lab Visit

T.E.A.M. 4 Travis didn't even officially exist when we visited Dr. Jean-Laurent Casanova at the St. Giles Laboratory of Human Genetics of Infectious Diseases at The Rockefeller University in Manhattan for DNA testing. 


Dr. Casanova and Dr. Selleri were colleagues at Cornell Weill School of Medicine in 2012 when they discovered the mutation in the Nkx-2.5 gene that causes Isolated Congenital Asplenia.


From this visit with Dr. Casanova, our vision of doing something to help stop children from dying from ICA came into focus. The day was filled with information, hope and encouragement that we could start this foundation. New to the journey of being a Rare Disease Patient Advocate, our only regret of the day was we didn't think to ask Dr. Casanova to pose for a picture with us.


The Rockefeller University - New York, NY